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devastated :(

Mandie37

Mandie37

Member
Well here goes. sorry if i barble on but need somewhere to vent.

I had my band in June 2013. Have struggled getting to the right restriction and was happily settled at 6.5mls. My weight had stalled for a while but seemed to start to move again when i got to that point. I was eating small amounts but not very much at all but had no sickness. Then ....boom i woke up one day and struggled to keep anything down at all. This had happened before so i decided to try and persevere in case something was stuck and would hopefully move. Anyway to cut a long story short, i went two weeks but was regurgitating even my coffe when in bed at night. Started to feel really quite ill and weak and decided to phone my nurse. She asked me to come in and have a fluro de fill. This is when they discovered i had a large 'pouch'. they took 5.5 mls out and told me to wait a month and hopefully the pouch would reduce.

After four weeks i went back last thursday to be looked at under x ray and unfortunately it was still there. It had reduced considerably in size so they put 1.5 back in but it immediately enlarged !!!

I was very upset at being told they may never be able to fill it again. At this point the nurses asked me to go and have a coffee to calm down and they would see my surgeon and see what his thoughts were.

Mr Agwunobi decided it was best to completeley de fill so that it was empty...for another month! apparently i have oesophagul dilatation.

I dont know what to do to be honest. im just so disappointed and cant believe i have to wait another month..i mean what if the pouch is still there?? another month wasted. Feel like i should be asking them to look sooner than that. The problem i have is that the two nurses looking after me are fantastic and i feel awful pushing for the outcome. Im not sure what my options will be if things are the same in four weeks. I really dont want the band taken out because i am nowhere near where i would like to be. Obviously i have to put my health first and i know that but by the time i see them it will have been like this for 8 weeks, nearly 9. They said "oh you can do it on your own" i was like errr no i cant because i wouldnt have had the damn thing in the first place if i could.

I am in such a bad place at the moment and feel sooo hungry all the time but terrified of piling the weight back on. Rebound hunger is a big problem apparently...

Any advice on what you would do in my situation would be greatly appreciated...do i complain and say i want something doing sooner after spending 7k?? do i ask what will happen in 4 weeks if there is no change? i just dont know

Thanks for listening

Mandie
 
Hi Mandie

I had a bypass and have to be totally honest and say I don't understand the 'workings' of the band or the 'head' side as the two ops are so different.

But I can totally understand your feelings of frustration and confusion - especially when the nurses are so nice so you don't want to upset them but then again it's your body (and your money) and that is what is important.

I really don't know what to suggest but am sending a 'cyber-hug'

xx
 
Thanks for your reply. I just feel i have been left in limbo. Kind of feel that well if it didnt go in the last four weeks whats to say it will in the next four. Strange because it almost feels like my safety blanket has gone because although i wasnt losing particularly well i wasnt putting any on either. Im just so upset and keep thinking why me...maybe i need to give myself a swift kick up the bum but i just cant help feeling so upset :cry:
 
Let yourself feel upset - it's totally allowable.

If you don't let yourself feel upset, you run the risk of feeling guilty about feeling upset (if that makes sense!!) which puts extra pressure on you which you don't need right now.

xx
 
You poor thing, that sounds so frustrating. I can understand your being upset - another month is a long time to wait in limbo.

I've not heard of this before, I've heard of band slips or erosion but this is new to me. Is the dilation due to internal swelling, is that why it would take time to settle?
I hope the month passes quickly and brings the answer you want(((hugs)))
 
hiya sorry to hear about your sitch! Gutting im guessing, let your self be upset so you can get your frustration out. What i would say is remember the band is only a tool, the rest is down to will power if you can keep your will power strong you can hack the waiting while your oesophagus calms down. Eat foods like chickent hat will fill you up! Protein first. Did they recommend a stint on liquids at all? x x
 
Thanks everyone. They havent recommended liquid but have told me to be very careful with the types of food i eat and portion sizes. The only thing thats worrying me is a dull constant somach ache quite high up. They have told me the pouch is one of the first signs of a slip which is why they have emptied it. Not sure what its all going to mean to be honest. Im not sure where to go or who to see about the stomach ache as im guessing if theres a problem more than the pouch i wont be covered privately ?? i really dont know...what a mess :(
 
what i would say is go to your gp if your worried have a word with them and see what they recommend? xx
 
Oh no! sorry to hear this Mandie.

When you feel up to it check through your paperwork to see what you are covered for, you only had the op five months ago. Have they said what they think caused it?

De filling and leaving you in limbo is not eally on, I hope you can get this resolved xx
 
Hi, I had a sleeve done privately and asked the question what if I have complications do I have to pay etc...? My surgeon told me that he would transfer me to an nhs patient.
I am sorry it hasn't worked out for you - i would be contacting my provider as usually the op is guaranteed for 2 years. Definitely check.
Sending hugs x
 
:( Poor thing, that sounds really, really rough. If you are really worried about the rebound eating why dont you join weight watchers or slimming world just to keep you focused and on track for the next month or so? might be a help if you go to the meetings and so on- might help with the temptation. good luck and i hope everything works out for you! xxx
 
Thanks to you all. Mazza I typed 2013 by accident when it was actually
Done in June 2012. I have two year cover but according
To the terms and conditions the cover doesn't
Include a slip!! They haven't confirmed it yet
As being a slip
But the beginning of one ?? I don't have any more
Fluro fills because was only entitled to three but
My consultant had negotiated that any further fills under x ray will
Be free because it's a complication ! I have spoken
To my bariatric nurse again today. Told them I was
Concerned about the stomach pain and didn't want to
Be ignoring it if it could be something serious. They said
The doubted it but the acids in my stomach will
Be upset because of the pouch. Advised to carry on
Taking omeprazole every day to try and settle it before I see them
Next Thursday. Asked them what they will do in four weeks if pouch
Hasn't gone now the band is empty. They said they aren't sure !!!
Possibly unbuckle it and reposition above the pouch if possible but
I have a gut feeling it's going to have to be removed.
Think that's the pessimistic side of me.

I appreciate all your comments and support because
At them moment I'm feeling really crap about it all.

Kind of want to kick some butt and told
Them today I wasn't happy at having to wait another month for
The outcome to be the same. They said unfortunately
It has to be
Done very slowly and the best case scenario is
That it settles to a point where they "may" be able
To slowly start to fill again. Hoping this is the case and guess I have
To be patient and maybe join slimming world to keep
Me on track in the meantime. I will keep you all informed as and when
I can. Thanks again


Mandie :/
 
Last edited:
I first had a band and it seems to be what had in the end I had it out then had a bypass a year later but because your private not sure about what you can do my bypass is so much easier I wish I could offer a better solution
Good luck with it so sorry about the pain it is causing
 
Hi all

Just thought i would update whats happening at the moment. The pouch thankfully went back down due to having the band emptied for 5 weeks. I went back in December and they put 1.5 mls back in. i saw the consultant and was told they would have to fill very slowly because once you have a pouch the likelihood of it happening again is high due to there being a weakness.

I am due to go back tomorrow morning for a further fill. I am really hoping they will put maybe 2mls in this time as i have no restriction whatsoever with whats in there now.

I have put a stone and a half on since the band was emptied in november and i am gutted. Partly my own fault because of over indulging at xmas etc. the biggest problem i found was the re bound hunger!!!! absolutely soul destroying :(

Fortunately it does seem to have subsided and i havent gained in the last week ...phew...

Fingers crossed tomorrow i get some a decent fill. If the pouch does re occur he told me that one alternative would be to surgically re position the band but thats not an option straight away.

I dont know, its hard and it really is a roller coaster and i have been very down and constantly beating myself up everytime i eat.

Sorry if i have rambled again but just wanted to update you all on the present situation. Keeping everything crossed as all the clothes i bought when i had lost now dont fit :(

mandie
 
Poor you. You have to be so patient with a band yet it's difficult when you're eager to get back on the losing side! Small fills is key.
Fingers crossed you get some restriction.
 
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