Nobody to relate to anymore on this site..just really fed up with abdomen problems

[emma-louise]

I've lost my weight and replaced my "heavy" problems with a new set of problems..
I'm going to post again and ask this question as sometimes the more serious questions get ingnored,there's more focus with people speaking about what you've ate today and clothes....
I feel quite alone on this site..there's no long termers about to compare experiences.
It's full of newbies and I can't relate to anymore,as my views are different..the honeymoon has long gone for me.
And I'm just left with a new set of issues..
You'd think after being 4 yrs and 5 months out I'd be just happy..but I ain't.

Everyday I've got abdomen problems.,I got a shed load of tablets to take daily..next week I've got my iron infusion sat on a drip for 6 hours,which in all honesty I'm desperate now to have it.
Passing out,dizzy..it's just constant,and this is just the start of my ongoing iron problems made worse since the bypass,as we don't absorb iron.

I can't do bending,stretching even sitting at the table for long as my abdomen bloats up like I'm 9months pregnant it goes rock hard,then the wind starts.
Along with the wind is a pain which is so bad it hurts even to breathe..like a stabbing pain.
I can only describe as a "kinking" in the abdomen like my inners are trapped.
The pain will ease eventually on its own,helped along with heat.

And daily is the burning pain in the abdomen,high up on the abdomen near the scars.
This is just uncomfortable and a nuisance..I have to take 2 sets of acid type meds to help with this.
They don't always work..but if I don't take them the pain is worse.

On my last appointment my yearly check up,the consultant was happy with maintained weight,but I said at times I regret surgery.
They agreed I'd had a few tests done to find out what's happening..but can't get any answers.
They originally thought I'd had a twisted bowel..
I've had camera down throat,2 body scans done 1 with dye..and now they might be going through the abdomen with a camera to check for a hernia.

I've not familiar with what is a hernia..what's does it feel like?
I'm sorry this isn't a great post..just really fed up,and I know my family wishes at times I've not had this bypass,especially my mother..

 

[chrisa]

Hi Emma I apologise I have not been around for the last 2 weeks I have been locked off the site it would not recohnise or let me change my email or password. I hav ejust got back in around 6pm tonight,

I am sorry to hear you are still suffering so much. I like you still get that twisted bowel feeling of pain only mine isn't as often as yours. But when it comes boy is the bugga painful. Aid is awful I have a friend who has had little or no voice for over a year now and tummy issues due to acid, She has had some speech therapy and it has gone again she has had to change her whole diet.

It is a shame that they can't say whats causing it. A hernia an be painful because it breaks through a hole and can become trapped if it becomes trapped for a long time it can become strangulated and be life threatening and very painful indeed. I can understand you feeling so alone and having to have the iron can't be very nice. Thankfully all my levels are ok but my weight is still up. I want to graze when in these long work shifts.

Please talk to me abput your issues I do understand and so sorry that I could not be there for you over the last fortnight it has been strange not been able to chat on here.

Thinking of you xx

 

[samp24]

Sorry I can't help in the way you would like, as I am not a long termer. However, I don't want to ignore yr post either as you sound totally fed up with yr lot! I have no idea how what yr going thru feels like, but I do know that sometimes you have to throw yr toys out of the pram when it comes to getting answers from the people who do have the tools/know how to get to the bottom of the problem and then come up with a plan to tackle it! I had years of mental health problems, that seemed to take me forever to get diagnosed and then forever to come up with a plan if action to try and sort it. Keep on at them, keep asking what's the next step, what do we try next and never except, I don't know as a forever answer. I found at times I was down right rude to the people who were treating me, as it seemed the only way to get accross to them how awful I was feeling. I would spell out to the people dealing with me what I wanted them to do, and for you that may mean different tests, second opinions untill they find the source of the problem. Please don't give up hope that they can find some resolution to yr abdomen nightmare. Everyone needs hope! What is the next step/appointment you have?

 

[emma-louise]

Thanks Chrisa and samp for your thoughts..
Chrisa you've always had the time to reply to me and can relate to me as you have similar issues at times.
Samp my next appointment is mid February with a consultant,previous my regular doctor at the hospital I had the bypass mentioned she was going to suggest whether a camera needs to go through the tummy to check for hernia.
That's why I wanted to know what a hernia feels like.
I'm sorry I had to post such a negative post in all honesty...I'm just cheesed off.

 

[kurstywursty]

I am a newbie am afraid. I have asked the question a couple of times "why there are no longer term folks around". I guess people just move on with life after surgery I am so so sorry to hear you are having all these problems xxxx

 

[emma-louise]

I am a newbie am afraid. I have asked the question a couple of times "why there are no longer term folks around". I guess people just move on with life after surgery I am so so sorry to hear you are having all these problems xxxx

It's sad kursty because we all have lives to get on with,but I feel I owe this site and those newly op my experiences of life after bypass..after all when you need help,most local gps have no clue.
So at least this site is somewhere to come for advice and help,so it's a shame long termers don't pop on now and again.

 

[kurstywursty]

I think even when you are struggling just to be able to come on to share how your feeling and receive some supportive caring feedback must help. Even if we can't relate to your experience ((((hugs)))))

 

[los in it]

hi,i have to agree with kurstywursty people join a site seeking advise, support and answers then in time people are living their new lifes as a smaller healthier people doing things that they never dreamed of doing so have less time for logging on and supporting others
im a newbie too but hope I continue to be part of this amazing forum

 

[tranquil_butterfly]

Hi emma-louise. Please do not leave the site. I can remember when you had your op as my first WLS was not long after. It is a shame that long termers do not post. I think a few are there but lurking rather than feeling up to posting. I admit I stopped coming when I got into my long fight for something to be done about the issues I had. It is lonely when you are in that place where you are in pain and no one is listening. I agree with samp - you do have to get stroppy and rude - become the 'problem' patient because otherwise they will ignore you. Keep fighting - you need answers and you need a resolution.

I am so sorry that you are going through this. It is important that everyone realises that surgery can come at a cost. There is great support here - even if someone does not have an answer they will try and provide some assistance - even if it is just a kind word - which can make all the difference in the world.

:hug99:thinking of you.

TBx

 

[mouse57]

Hi Emma Louise you were a help to me on more than one occasion, and as you know I'm fairly new but like others have said the support is here even if it's just for you to have someone to talk to about how your feeling. Don't leave the site because you will get support, maybe someone will be suffering like you and could offer you advice

 

[emma-louise]

Hi emma-louise. Please do not leave the site. I can remember when you had your op as my first WLS was not long after. It is a shame that long termers do not post. I think a few are there but lurking rather than feeling up to posting. I admit I stopped coming when I got into my long fight for something to be done about the issues I had. It is lonely when you are in that place where you are in pain and no one is listening. I agree with samp - you do have to get stroppy and rude - become the 'problem' patient because otherwise they will ignore you. Keep fighting - you need answers and you need a resolution. I am so sorry that you are going through this. It is important that everyone realises that surgery can come at a cost. There is great support here - even if someone does not have an answer they will try and provide some assistance - even if it is just a kind word - which can make all the difference in the world. :hug99:thinking of you. TBx

Thanks Los and tranquil...

I'll be honest now,I find at times this site is very "clicky" and will only post on each other threads.
Most posts now that get replies are the photos ones,look at my dress,or what I ate today...there's nothing wrong with that.
But I've noticed myself included when a more serious question pops up,you don't get many replies,and it's dishearting.
I understand the majority on this site are in the honeymoon period still..which is the first 2 years.
It would be nice if people could take the time out of their "click" and help others.

I miss ccpm she had so much to offer..but like me she ended up leaving as a long termer as people wasn't interested in what we have to offer.
It's all well and good at the minute,but what if you have issues further down the line?
I think long termers end up leaving because we don't feel part of the group anymore,and yes probely because they are getting on with life too.

My original question...has anyone had experience of a hernia?

 

[emma-louise]

Hi Emma Louise you were a help to me on more than one occasion, and as you know I'm fairly new but like others have said the support is here even if it's just for you to have someone to talk to about how your feeling. Don't leave the site because you will get support, maybe someone will be suffering like you and could offer you advice

Hi mouse..I won't leave..just feeling rather fed up today..
I know people can't always have answers but it's nice just to have a reply it's a bit of support.
At the minute I'm suffering in silence as I know my family wished I hadn't had this op,so I keep a brave face.
This is the only place I can off load..but like I say It's hard to relate to most on here as they are honeymooners

 

[mouse57]

Emma Louise contact princess4d4 she had not long ago had a hernia repair she is fairly new can't remember when she was bypassed , it was earlier last year and I know she had the op just before Christmas, hers was a rushed job but I'm sure she would give you some advice the only thing I know about hernias is one of the tests is your asked to cough and that way they can see it but that's all I know Nd a bit about how they repair them

 

[emma-louise]

Emma Louise contact princess4d4 she had not long ago had a hernia repair she is fairly new can't remember when she was bypassed , it was earlier last year and I know she had the op just before Christmas, hers was a rushed job but I'm sure she would give you some advice the only thing I know about hernias is one of the tests is your asked to cough and that way they can see it but that's all I know Nd a bit about how they repair them

The docs have had a feel about ontop of tummy and felt nothing..I've pushed about...nothing.
That's why I think a camera is needed.

 

[tranquil_butterfly]

emma-louise, I have a hernia. It developed after my first op. I knew the signs because my late father had one that became strangulated. I have not experienced the symptoms you have described. I can feel it though - it is a large mass right by my belly button. Since I have had my revision surgery the symptoms I did experience with it, pain and nausea plus sickness have lessened. They diagnosed the hernia after doing an ultrasound. There are different types of hernia they can be repaired. They are going to do mine once I have lost sufficient weight as they can come back again.

I hope you get some answers soon.

TBx

 

[emma-louise]

emma-louise, I have a hernia. It developed after my first op. I knew the signs because my late father had one that became strangulated. I have not experienced the symptoms you have described. I can feel it though - it is a large mass right by my belly button. Since I have had my revision surgery the symptoms I did experience with it, pain and nausea plus sickness have lessened. They diagnosed the hernia after doing an ultrasound. There are different types of hernia they can be repaired. They are going to do mine once I have lost sufficient weight as they can come back again. I hope you get some answers soon. TBx

Thanks tranquil..I'm sure the doctors are puzzled too,I get pain after sitting a long time!..how can I go on not even being able to sit..that's why it's getting me down a bit x

 

[tranquil_butterfly]

The symptoms are strange. After seeing that post from Bonita the other day sometimes they cannot tell for sure until they get inside and have a look around so the sooner they do that the better.

I miss CCPM too.

TBx

 

[chrisa]

Emma did you say you had had scans? Do you think it could be an abscess/ cyst around the join to the bowel. That would explain the pain and cramps because I would imagine when its swollen and sore which could be a lot of the time as it would probably become irritated as food passes through it often and could cause spasms of pain if it is pushing against something else. Have thye checked your bowel? I know I have a small rectocil but of you had a large one that would cause pain issues to because the bowel struggles to empty which will cause tummy bloating swelling and pain which will be cramp like because the food will be unable to pass through, that's sometimes what I feel like when I have pain. I sometimes feel like something is trying to push through. I recently read that kidney stones are common which are aided by the taking of calcium. I have wondered if that's what my pain is. The pain and pressure could be a stuck stone and once its passed through painful as it is the relief when the pain goes is immense. I am not sure about the iron deficiency how often are we supposed to have our bloods checked now we are long termers I am almost 3 1/2 years post now? I have taken all meds daily but I have only ever taken 1 adcal daily never the 2. My thoughts are with you Emma lets find a solution to the problem there is always an explanation for the pain and whilst it will still hurt if we put a name or reason to it we seem to cope with it better. Long term pain and discomfort does take its toll. I have to admit putting a little ebit of weight back on has helped my bottom somewhat as I no longer get those excruciating pains as a I am a little more padded again and my boobs don't look quite as empty as they did. Skinny isn't for me size 20 is me its still a long way from 32-34 I used to be and only yesterday I saw a young lady with a baby who used to be in one of my groups from school and she didn't recognise me I had to say who I was and she said by you have lost loads of weight, I just said yes I have. I feel guilty not getting down any lower than an 18. But that is why I had to have the op in the 1st place, my weight never comes off like other peoples and I get disheartened and depressed. I am ok but sad that I can't be like everyone else and I know because of your pain you feel something very similar to me just for different reasons. To people I have just met who never knew me before I am just large to me I am fat but a lot less than I used to be. Our heads do not help us as I think I become paranoid sometimes about it. The last meet up I went to I said to one friend that I had put on a little regain and she said yes I can see it. WEll you can imagine what a dagger to the heart that was. But that's life xx lol chinup am at work today xx

 

[emma-louise]

Emma did you say you had had scans? Do you think it could be an abscess/ cyst around the join to the bowel. That would explain the pain and cramps because I would imagine when its swollen and sore which could be a lot of the time as it would probably become irritated as food passes through it often and could cause spasms of pain if it is pushing against something else. Have thye checked your bowel? I know I have a small rectocil but of you had a large one that would cause pain issues to because the bowel struggles to empty which will cause tummy bloating swelling and pain which will be cramp like because the food will be unable to pass through, that's sometimes what I feel like when I have pain. I sometimes feel like something is trying to push through. I recently read that kidney stones are common which are aided by the taking of calcium. I have wondered if that's what my pain is. The pain and pressure could be a stuck stone and once its passed through painful as it is the relief when the pain goes is immense. I am not sure about the iron deficiency how often are we supposed to have our bloods checked now we are long termers I am almost 3 1/2 years post now? I have taken all meds daily but I have only ever taken 1 adcal daily never the 2. My thoughts are with you Emma lets find a solution to the problem there is always an explanation for the pain and whilst it will still hurt if we put a name or reason to it we seem to cope with it better. Long term pain and discomfort does take its toll. I have to admit putting a little ebit of weight back on has helped my bottom somewhat as I no longer get those excruciating pains as a I am a little more padded again and my boobs don't look quite as empty as they did. Skinny isn't for me size 20 is me its still a long way from 32-34 I used to be and only yesterday I saw a young lady with a baby who used to be in one of my groups from school and she didn't recognise me I had to say who I was and she said by you have lost loads of weight, I just said yes I have. I feel guilty not getting down any lower than an 18. But that is why I had to have the op in the 1st place, my weight never comes off like other peoples and I get disheartened and depressed. I am ok but sad that I can't be like everyone else and I know because of your pain you feel something very similar to me just for different reasons. To people I have just met who never knew me before I am just large to me I am fat but a lot less than I used to be. Our heads do not help us as I think I become paranoid sometimes about it. The last meet up I went to I said to one friend that I had put on a little regain and she said yes I can see it. WEll you can imagine what a dagger to the heart that was. But that's life xx lol chinup am at work today xx

Chrisa I've had 2 scans done full body ones,one with dye.
I don't think the bowel area has been checked,but my pains are more at the top of the abdomen.
Something is definetly kinking in that area..the docs just look puzzled when I tell them.
But it's that bad I can't breathe and have almost rung an ambulance on 2 occasions.
I've been checked for gallstones I'm ok there.
Chrisa I'm scared if I don't get any answers I've got to grow old living like this..and the pain disappears after a while.
And Chrisa you look great,maybe when the weather gets warmer your weightloss might kick start,I know mine does.

 

[Michelle79]

Hello emmalouise have you been checked for heliobacter pylori its a bacterial stomach ulcer I've had it and the symtoms you have are what I had, they test by blood test x