wls and the kidneys

[swizzlestick]

Heya

I was just wondering if anyone here has had a gastric bypass who also had problems with their kidneys. I don't necessarily mean kidney stones but other things like chronic kidney infection (chronic meaning long term), kidney damage, nephritis or any other kidney disorder.

I am a little worried at the moment as I have a kidney infection for about 2 yrs that has not responded to antibiotics, I have just been given a new lot but on taking them began to projectile vomit and had to stop. I went to read the leaflet and discovered 9 of the contra indications on the packet apply to me so will go see my gp this week to see if there is another alternative.

I am at the final stages of my bypass journey, have had sleep obs and get results in a couple of weeks. Am hoping for the bypass by autumn (fingers crossed). All of my other health conditions have been checked and are being monitored in regard to the surgery and I am concerned that the kidney issue, if not resolved properly beforehand may be the obstacle that halts wls.

I hope there is someone out there who can advise me

Thankies Xx

 

[fairyringuk]

I too am pre op and although I have had several kidney infections this year hope they will not become chronic, although it is probably down to my diabetes the doc said.
I wish you all the best and hope the doc gets your meds sorted out okay and gets you cleared up before your op. I think any type of infection would prevent surgery swizzles but fingers crossed you will be fine.

Jay xx

 

[swizzlestick]

Thanks for your reply Fairy

I hope I am worrying over nothing, being as soo many other health obsticles have been overcome on this journey. Diabeties is one of the few things I do not have wrong with me lol, dawg knows how!

Phoebe Xx

 

[shelbell]

As per usual with health probs I can say yes lol. I have interstitial nephritus which is related to my lupus and my kidneys used to function at about 80% of normal. My createnine levels were always raised and I always had protein/blood in my urine.

Post op, they are now functioning normally, for the first time in 16 years.

They caused no problems for me during or post op, and didn't delay or hinder the surgery.

HTH

 

[swizzlestick]

Ah Shel

another thing we have in common then I can't tell you how helpful it is having someone with the same range of health issues who has already been through this process. Not that I would wish you or anyone else bad health, you understand but it's like a bleepin minefield with one thing and another, just as you get over one hurdle and feel confident everything will be ok, another pops its ugly head up.

It might sound daft, but because of all the health problems Ive had, I do stress a lot even though I know stress makes it worse. Your own experience puts my mind at rest more than even a doc probably could as most docs dont have a wide experience of either the Lupus or wls and especially in combination.

Thanks again, Phoebe Xx

 

[margaretmc]

Hi Phoebe
I`m type 2 diabetic and have to go to the diabetic clinic twice a year and they keep an eye on my kidneys and their OK . But I do go to the loo a hell of a lot of times a day . It could be because I`m fat I don't no . Good luck and take care .
Margaret xx

 

[swizzlestick]

Thanks for your reply Margaret

I get seen once a year at the Lupus unit here in London St Thomas, the last appointment they wrote to my gp to tell him there were leukocites in my urine again, i was put onto cephalaxin, didnt work, and just last week was given ciprofloxacin which made me shall we say 'projectile' I read the leaflet inside and 9 of the contra indications apply to me! Back to the gp this week me thinx. I've not been able to shake this kidney infection for about 2 yrs give or take, they kept me in hospital overnight in November for it.

Xx PHOEBE

 

[margaretmc]

Hi Phoebe
I hope you get sorted out hun because its no joke . Good luck and take care.
Margaret xx

 

[shelbell]

I know what you mean Phoebe, lupus is so often misunderstood and mismanaged, it's scary! Mine is just completely unmanaged right now, which with the pregnancy is slightly alarming. Can't face another doctor and clinic though right now.

The surgery, and the weight loss, has made such a huge difference to my health, I never thought it was possible. Pregnancy is reversing a lot of that, temporarily, which makes me realise even more how good I've had it for the last 8-10 months.

 

[swizzlestick]

How far into the pregnancy are you now shel? If you do have any worries or concerns you can always contact a very lovely lupus nurse at St Thomas by email, I shall pm you the addy, that way you dont actually have to see anyone and she can advise you.

I know what you mean about facing another doctor, I spend half my life in hospital and doctors waiting rooms, My new years resolution this year was to attend the bare minimum appointments I was given as last year along with all the dentistry I had in excess of 40 appointmets and it just dragged me down and tbh, none of them improved anything. Unfortunately, this year is shaping up to be no different. I've had 25 appointments so far this year and because of the wls I need to make sure everything else is as good as it can be under the circumstances as not to cause any complications.

Your story gives me the hope I need to spur me on and not just give up

Phoebe Xx

 

[shelbell]

17 weeks now, and just feeling the first kicks Thanks for the info, will make sure I keep hold of that.

I got to the stage a couple of years ago where I was under 9 consultants. it was affecting my work and costing me a fortune (pay to park at the hospitals here) so i really cut back and basically said if you aren't helping me I'm not coming back!

 

[PinkyButtonz]

I think I've had it fairly easy with my Lupus than you Phoebe & Shell.

My consultant is brilliant, I can't fault him apart from his flirting with my mum or daughter .

I've not really been under more than 1 or 2 consultant at a time, until I was referred for wls. If it were not for wanting the Op I think I'd give them a miss.

 

[shelbell]

The joys of london though, you have decent lupus specialists down there! Up here I was managed for years by my nephrologist. I lodged a complaint against him a couple of years ago and am now not managed by anyone.

 

[swizzlestick]

It's pretty much the same for me here Shel, I'm resigned to waiting till after the wls to cut them all the appointments back now.

There are some great specialists here, but like anything really there are good and bad. I tend to find at St Thomas they are too concerned with their research and patients that fit their research brief and focus on them. Naturally those who are critically ill are of interest to them but for those who are 'run of the mill' sufferers, they tend to get the annual 'tick all the boxes' appointment, 9 phials of blood taken and then wait a year till your next appointment to get the results. In the meantime you are seeing all manner of different people at different places for different parts that the lupus clinic havent even bothered to look into themselves. It was my cardio thoracic consultant who sent me for the digestive investigations, its my gp trying to sort the kidneys out, my dentist who sent me to the dental hospital who in turn reffered me to the cns specialist.

You are at the Royal London arent you Pinky, it sounds like thankfully your being taken good care of and are happy with your care

Xx

 

[PinkyButtonz]

Its not right, Lupus isn't just affecting people in London.
I hope that changes soon.

 

[PinkyButtonz]

You are at the Royal London arent you Pinky, it sounds like thankfully your being taken good care of and are happy with your care

Xx

I'm at the Mile End.

 

[swizzlestick]

Is the Mile End no longer part of The Royal London Hospital along with Barts, Pinky? Blimey my sister gave birth to my neice in the Mile End and my grandad and his brother used to be porters there years ago and another relative was a dietician there. My neice is 23 now.......dont time fly!

 

[PinkyButtonz]

Is the Mile End no longer part of The Royal London Hospital along with Barts, Pinky? Blimey my sister gave birth to my neice in the Mile End and my grandad and his brother used to be porters there years ago and another relative was a dietician there. My neice is 23 now.......dont time fly!

I think it still part of TRL. I'm glad I don't have to go to one of the bigger hospitals for my Lupus. I can just imagine the waiting room. Plus parking is not too bad there.