Hi Emma I'm almost permanently anaemic they've given over with transfusion because it brings it up for a short while then slips again and they can't keepdoing it. I am permanently on 3 Ferrous sulphate a day as well as forceval, adcald3, b12 jabs (which I was never given for the first year and half) vit d 5000iu, then I have tablets for my rheumatoid arthritis ,osteoporosis ( which has got much worse since my DS ) amtriptiline for fibromyalgia, tramadol all in all 21 tabs a day so its really hard trying not to take iron separately coz while still eating the drinking 30 mins each way of food doesn't really leave me a lot of time in between .... I am thinking my eating is playing up with my health and deficiencies too Chrisa as I say thye osteoporosis is really bad now they said im like 70 yr old bones they cant operate on my damaged vertebraes coz the bones wont hold pins rods etc or the cement they can fuse with and the neurosurgeon I saw on wed this said there is another vertebrae about to move forward as well ( sponyliothesis ) and I could end up in a wheel chair ...so they spend years and years saying angela lose the weight it will help with joints etc etc etc and it hasn't at all just made them worse because of the malabsorbtion after DS ...sorry to go on but once I started couldn't stop
Hi Emma
I'm almost permanently anaemic they've given over with transfusion because it brings it up for a short while then slips again and they can't keepdoing it. I am permanently on 3 Ferrous sulphate a day as well as forceval, adcald3, b12 jabs (which I was never given for the first year and half) vit d 5000iu, then I have tablets for my rheumatoid arthritis ,osteoporosis ( which has got much worse since my DS ) amtriptiline for fibromyalgia, tramadol all in all 21 tabs a day so its really hard trying not to take iron separately coz while still eating the drinking 30 mins each way of food doesn't really leave me a lot of time in between .... I am thinking my eating is playing up with my health and deficiencies too Chrisa as I say thye osteoporosis is really bad now they said im like 70 yr old bones they cant operate on my damaged vertebraes coz the bones wont hold pins rods etc or the cement they can fuse with and the neurosurgeon I saw on wed this said there is another vertebrae about to move forward as well ( sponyliothesis ) and I could end up in a wheel chair ...so they spend years and years saying angela lose the weight it will help with joints etc etc etc and it hasn't at all just made them worse because of the malabsorbtion after DS ...sorry to go on but once I started couldn't stop
Talk away Angie,
If I'm honest I'm feeling a bit pissed off tonite,
Do you ever get any side effects with the iron?
Do you regret your DS at all?...I do worry sometimes what the future holds especially with deficiencies.
Chrisa I had my gallbladder removed last Christmas and as is usual with me after 4 keyhole they opened me up coz it was sticking to my duodenum Emma I'm so sorry to have put such a worrying message but I'm sure I'll be fine in th long run and if I'm not well at least I gave it a go I still think I'd rather had it done with hope of living more years with my family and beautiful grandchildren xxx than not having it and drop dead from all the horrible effects from being 22 1/2 stone please don't let this put you off at all if you're pre op but maybe be wary and watch the blood tests etc and speak to your team as much as possible xxx
Sorry to hear you had bad night yesterday Emma hope its a little better today, thinking of you xx
I have taken to drinking more tea n coffee hope that my levels stay ok, I have never yet been told any of them weren't. Even the one I had done at the hospital when I was discharged not a word so all must be well. xxx The tea n coffee help me not to snack in between meals xx Having a biscuit is a habit not because I am hungry. I have to remind my self of that. xx