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multi disiplinary meeting result

thankyou :) I feel so reassured coming on here. Catherine at the hospital stated that she didn't know what went of in the meeting, what evidence they had, or how they came to the conclusion that I don't qualify. I believe because im a revision, they aren't sure If I would get funding and because of that doubt they have said no. Things that qualify instantly are band erosion/slip, however my symptoms are not ov that, however they are still medical in my opinion. She also said that if I get funding via prior approval they will go ahead simple as that. So basically that's what im going to do, im due to get a phone call today to speak to my gp about prior approval. Im going to go in with the revision surgery policy, highlight which grounds I feel I should be on, and why. I understand its a touchy subject with the sensation as I could be lying about that, but my medical history shows that for those 2 years I committed easily to that life and consistently had a slow but steady loss. Untill that one fill when all hell broke loose. I really really hope they accept me, I would love to see the prior request document to think of what im going to put first, but cannot find it anywhere online.
hope you get it sorted don't give up just keep on at them to wear them down x
 
thanks guys, the plot thickens, for the Derbyshire area there is no process for a prior approval request. Basically is is the hospitals duty to assess my medical need and apply, or I do a individual funding request. I have explained my concerns about going back to the hospital for another MDT meeting, as they seem to have brushed me of so quickly as not eligible :( I don't know feeling more hopeless than ever. Waiting for gp to call so I can have an appointment to look at this criteria and either do a individual funding request, or re-write to the hospital.
 
I know its disappointing but please dont give up. I applied for surgery 2 years ago and got declined saying I didnt fit the criteria but even though my world shattered, I carried on and now I have had it done. Just keep trying and dont give it all up !
 
I know its disappointing but please dont give up. I applied for surgery 2 years ago and got declined saying I didnt fit the criteria but even though my world shattered, I carried on and now I have had it done. Just keep trying and dont give it all up !

Did they tell you why you didn't fit the criteria ? X
 
hello guys, no they haven't specified at all. Basically my gp sent a letter saying please can rebecca have a consultation with a surgeon to discuss her revisional options following band complications. This we egnored and they went straight to MDT without finding out why I had actually applied in the first place. After speaking to the specialist commissioner who helps to write the revisional surgery policy. It seems to me that for people who had bariatric surgery privately and require revisional surgery, they must be refered to weight management services. Im going to copy and paste what it says.

Group 4
a) Some patients may have had their primary obesity surgery outside of NHS Contracts at Private Providers (in Europe, or within the United Kingdom) but subsequently present at NHS facilities as clinical emergencies. The NHS has a duty of care for these patients and will fund emergency and clinically urgent treatment on a similar basis as Group 1 patients.
b) Many of these patients may not have met the full NHS England Criteria and Guidance for their primary obesity surgery and may not have been adequately followed up. These patients should be referred to the Tier 2 or 3 weight management services.
Any request for further (up to two years only) band filling and/or routine outpatient follow-up care (not associated with an acute, non-elective episode for these patients) will require the agreement of the commissioner in the Area Team and will need to demonstrate that the patient has met NHS England’s eligibility criteria for obesity surgery. The patient’s GP and Private Provider will therefore be required to
Page 5 of 6
collaborate to provide evidence on:
1. Weight Management Service attendance including Tier 3 2. NHS England criteria and Guidance fulfillment 3. Primary obesity operation 4. Follow-up attendance 5. Response to primary operation defined by progress with reduction of excess weight at 1 and 2 years including impact on co-morbidities


So basically my understanding is that they will have to refer me to weight management services. Which I don't mind going through as long as im going to have an end result. My gp should be able to look at this and refer me to them directly, which I hope will be the case, then I can start hoop jumping. But my question is if I complete all this weight management lark, will they still turn me away because my bmi is 45 and not 50. If so then it would be a waste of time doing it all :( so im not really that much clearer :(
 
hello guys, no they haven't specified at all. Basically my gp sent a letter saying please can rebecca have a consultation with a surgeon to discuss her revisional options following band complications. This we egnored and they went straight to MDT without finding out why I had actually applied in the first place. After speaking to the specialist commissioner who helps to write the revisional surgery policy. It seems to me that for people who had bariatric surgery privately and require revisional surgery, they must be refered to weight management services. Im going to copy and paste what it says. Group 4 a) Some patients may have had their primary obesity surgery outside of NHS Contracts at Private Providers (in Europe, or within the United Kingdom) but subsequently present at NHS facilities as clinical emergencies. The NHS has a duty of care for these patients and will fund emergency and clinically urgent treatment on a similar basis as Group 1 patients. b) Many of these patients may not have met the full NHS England Criteria and Guidance for their primary obesity surgery and may not have been adequately followed up. These patients should be referred to the Tier 2 or 3 weight management services. Any request for further (up to two years only) band filling and/or routine outpatient follow-up care (not associated with an acute, non-elective episode for these patients) will require the agreement of the commissioner in the Area Team and will need to demonstrate that the patient has met NHS England's eligibility criteria for obesity surgery. The patient's GP and Private Provider will therefore be required to Page 5 of 6 collaborate to provide evidence on: 1. Weight Management Service attendance including Tier 3 2. NHS England criteria and Guidance fulfillment 3. Primary obesity operation 4. Follow-up attendance 5. Response to primary operation defined by progress with reduction of excess weight at 1 and 2 years including impact on co-morbidities So basically my understanding is that they will have to refer me to weight management services. Which I don't mind going through as long as im going to have an end result. My gp should be able to look at this and refer me to them directly, which I hope will be the case, then I can start hoop jumping. But my question is if I complete all this weight management lark, will they still turn me away because my bmi is 45 and not 50. If so then it would be a waste of time doing it all :( so im not really that much clearer :(
No it's not a waste of time as by nice guidelines your bmi has to be over 40 which it is. Have you not done weight management plan before then?
 
Hi michelle ive never done weight management before as I was a private patient. I don't mind doing the weight management my bmi is 45/46 and I have arthritis which I believe is classed as a comorb. Also having a sleep apnoea test soon, so I qualify to go straight into teir 3 which Is great. But im worried that although im accepted for that at the end of it all, when they refer me for bariatric surgery I will still be turned down as the threshold is bmi of 50 irrespective of comorbs and whether the patient has completed teir 3 or not. They work from different policies, here is the one they claim to be working to

Bariatric surgery is a treatment for appropriate, selected patients with severe and complex obesity that has not responded to all other non-invasive therapies. Within these patient groups bariatric surgery has been shown to be highly cost effective. Bariatric surgery is recommended by NICE as a first-line option for adults with a BMI of more than 50kg/m2, in whom surgical intervention is considered appropriate. However, it will be required that these patients also fulfil the criteria below. Selection criteria of patients for bariatric surgery should prevent perverse incentives for example patients should not become more eligible for surgery by increasing their body weight. Similarly the selection criteria should not forbid bariatric surgery for patients who have lost weight with non-surgical methods
Eligibility for bariatric surgery Surgery will only be considered as a treatment option for people with morbid obesity providing all of the following criteria are fulfilled:  The individual is considered morbidly obese. For the purpose of this policy bariatric surgery will be offered to adults with a BMI of 40kg/m2 or more, or between 35 kg/m2 and 40kg/m2 or greater in the presence of other significant diseases.  There must be formalised MDT led processes for the screening of co-morbidities and the detection of other significant diseases. These should include identification, diagnosis, severity/complexity assessment, risk stratification/scoring and appropriate specialist referral for medical management. Such medical evaluation is mandatory prior to entering a surgical pathway.  Morbid/severe obesity has been present for at least five years.  The individual has recently received and complied with a local specialist obesity service weight loss programme (non surgical Tier 3 / 4), described as follows: This will have been for duration of 12-24 months. For patients with BMI > 50 attending a specialist bariatric service, this period may include the stabilisation and assessment period prior to bariatric surgery. The minimum acceptable period is six months. The specialist obesity weight loss programme and MDT should be decided locally. This will be led by a professional with a specialist interest in obesity and include a physician, specialist dietician, nurse, psychologist and physical exercise therapist, all of whom must also have a specialist interest in obesity. There are different models of local MDT structure. Important features are the multidisciplinary, structured and organised approach, lead professional, assessment of evidence that all suitable non invasive options have been explored and trialled and individualised patient focus and targets. In addition to offering a programme of care the service will select and refer appropriate patients for consideration for bariatric surgery.

This makes me think the threshold for derby is 50 no matter what, which would mirror what the nurse said. If this is true I stand no chance irrespective of weight management, comorbs, or complications what a joke!
 
Hi michelle ive never done weight management before as I was a private patient. I don't mind doing the weight management my bmi is 45/46 and I have arthritis which I believe is classed as a comorb. Also having a sleep apnoea test soon, so I qualify to go straight into teir 3 which Is great. But im worried that although im accepted for that at the end of it all, when they refer me for bariatric surgery I will still be turned down as the threshold is bmi of 50 irrespective of comorbs and whether the patient has completed teir 3 or not. They work from different policies, here is the one they claim to be working to

Bariatric surgery is a treatment for appropriate, selected patients with severe and complex obesity that has not responded to all other non-invasive therapies. Within these patient groups bariatric surgery has been shown to be highly cost effective. Bariatric surgery is recommended by NICE as a first-line option for adults with a BMI of more than 50kg/m2, in whom surgical intervention is considered appropriate. However, it will be required that these patients also fulfil the criteria below. Selection criteria of patients for bariatric surgery should prevent perverse incentives for example patients should not become more eligible for surgery by increasing their body weight. Similarly the selection criteria should not forbid bariatric surgery for patients who have lost weight with non-surgical methods
Eligibility for bariatric surgery Surgery will only be considered as a treatment option for people with morbid obesity providing all of the following criteria are fulfilled:  The individual is considered morbidly obese. For the purpose of this policy bariatric surgery will be offered to adults with a BMI of 40kg/m2 or more, or between 35 kg/m2 and 40kg/m2 or greater in the presence of other significant diseases.  There must be formalised MDT led processes for the screening of co-morbidities and the detection of other significant diseases. These should include identification, diagnosis, severity/complexity assessment, risk stratification/scoring and appropriate specialist referral for medical management. Such medical evaluation is mandatory prior to entering a surgical pathway.  Morbid/severe obesity has been present for at least five years.  The individual has recently received and complied with a local specialist obesity service weight loss programme (non surgical Tier 3 / 4), described as follows: This will have been for duration of 12-24 months. For patients with BMI > 50 attending a specialist bariatric service, this period may include the stabilisation and assessment period prior to bariatric surgery. The minimum acceptable period is six months. The specialist obesity weight loss programme and MDT should be decided locally. This will be led by a professional with a specialist interest in obesity and include a physician, specialist dietician, nurse, psychologist and physical exercise therapist, all of whom must also have a specialist interest in obesity. There are different models of local MDT structure. Important features are the multidisciplinary, structured and organised approach, lead professional, assessment of evidence that all suitable non invasive options have been explored and trialled and individualised patient focus and targets. In addition to offering a programme of care the service will select and refer appropriate patients for consideration for bariatric surgery.

This makes me think the threshold for derby is 50 no matter what, which would mirror what the nurse said. If this is true I stand no chance irrespective of weight management, comorbs, or complications what a joke!
It is a joke most primary care trusts go by nice guidelines which is a bmi of over 40 so I don't know what to suggest I'm so sorry x
 
It is a joke most primary care trusts go by nice guidelines which is a bmi of over 40 so I don't know what to suggest I'm so sorry x

I also reckon it's aswell cause you've gone private before they do get funny if you have had private surgery x x
 
Hi Becky I am new on here. I am in a similar situation to you I think. I am in the Manchester area and yesterday they applied for funding to reposition my gastric band they
Told me I have a 50/50 chance of approval can you tell me where you found the NICE guidelines for revision surgery as I spent all last night looking on line for them they have said I don't qualify to have a different type of surgery because my bmi is lower than 40 but they may accept me for a repair procedure
I have similar symptoms to you have you had a barium swallow? My endoscopy didn't show anything but my X-Ray did. I have been crying all night I too am a single mum although my son is a lot older than yours and I borrowed the initial £5000 to have surgery with the hospital group I lost 6 stone but have but 2 1/2 back on and I have also been having fills and unfills with the Nhs for the last 12 months
Good luck be nice to hear from you and have someone to talk to who understands xx
 
hi monalisa, there on the NHS England website. Update from me, after stomping my feet ive actually got an appointment with Mr Leeder for the end of November. Where im going to ask him why there was no consultation or at least a effort to find out why I was applying for revision before having the MDT. Im not expecting anything to come of it at all :( So I've looked at all options such as abroad and back with the hospital group. They have quoted band remval to bypass at £9960. Ive just got of the phone to a bariatric nurse at derby, and simply enquired as to what would happed with my already agreed aftercare, if I funded a bypass myself. My answer was my aftercare would end, and then I received a long rant about how the NHS is not a god given right, and they can refuse to treat me. She also said I will get ill as some point and the NHS are left to pick up all the pieces, and how I should be thinking of my family rather than another opp! Absolutly disgusted! I don't expect the NHS to "pick up the pieces" Ive saved them £6000 already! my god is the whole hospital against me. I asked what sort of aftercare is needed for the bypass because as far as im aware, unless its a medical emergency, the majority of aftercare is blood testing for your vitamin levels, and b12 injections, which I believed to be from the GP anyway not the hospital. Her answer was "not nessesarily", so now she has scared me to death thinking the opp = guaranteed illness, and the NHS wont help me because I went private. Im going to my GP tomorrow hopefully to speak to her about if I did go private, would the GP provide blood tests and b12 injections, also to discover what other aftercare is needed for the bypass. Im on income support and a single mother, why shouldn't they give me a 67p b12 injection when I have saved them £16,000!!!! GRRRRR so frustrated. The new NHS for derby is now 50 BMI meaning I would have to be 3 stone heavier! All this ontop of university and exams ive about reached my gut full of it! excuse the pun! LOL xx
 
Oh becky! Sounds like you're having a complete nightmare! I have absolutely no advice except if you do go private most packages offer a two year aftercare included in the price. I hope it all comes together for you! Big virtual hug for you! x
 
Hello, its been a while thought I would just give you a quick update, I recently went to see Mr Leeder at the NHS Derby hospital. He explained that he had requested an appointment for me and he dosent know why the receotionist didn't give me one .... resulting in a mdt without the facts. He basically said in the shortfall that im a oddity because I don't meet specific band slip/erosion but have signs/syptoms. He also wasn't sure about the new revision surgery policy which came out in august, so the top and bottom of it is, he told me to get my gp to do a individual funding request and that he would support it. So that's what im going to do, im not very hopeful for the IFR I know how impossible it can be to get funding, you really do have to explain your a clinical exceptionality. But hey ho ive got nothing to lose. So hopefully this Friday I can get in with my doctor and approach her about this referral.

In the mean time I have a private consultation booked for end of Dec with the hospital group and the surgeon James Halstead. I want to keep my options open and don't want to pin it all on the nhs when im doubtful. Im hoping here I can find the right surgery for me sleeve/bypass, and all the supporting advice to make that choice. Im very scared about a bypass and the malapsorbive issues etc etc, also because of the long term complications when getting older of getting nutrients etc.

Basically if I go private its going to cost me £9950 for a band to bypass/sleeve conversion, the cheapest ive found in England. It means me sacrificing everything money wise, but im prepared to do it! I may be able to just make the money if I try my hardest and live on the bare essentials. Its a sacrifice im going to have to make, I need help the weight is piling on, and I cannot do it on my own. My mental health has suffered immensely through re-gaining the weight, and so has my son missing out on a active mum who will fit onto rides with him. So much more is being lost than just money. Its a price im willing to pay, but I am concerned im going to pay with my life :( a bit all over the place atm.
 
Awh Becky I feel so much for you I have commented on your post previous as I am in a very similar situation to you I had my original band with James halstead hospital group and lost 6 stone having put about 2 1/2 back on suffering with acid having endoscopy fills unfills for over 12 months they finally diagnosed me with pouch dilation which has forced the band down. I do not meet the bmi for revision surgery which here in Manchester is 40 but I have just found out the nhs will fund me to have the band repositioned my pre op is 2nd jan is this not an option for you? Xxx
 
Becky
If you come back on would you mind letting me know exactly how to get these revisional surgery guidelines up on the NHS England website I have tried and tried and can't find them and feel like I'm hitting my head in the wall I've even rung them to no avail and am desperate to read them before I go for my band repaired to see if there are any other options available or if anyone else can help me please xx
 
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