awwww thanks everyone! im filling up here! thanks for your support!
id not seen that vid b4 rose, thanks! - theres a few on you tube about it, luckily what i have is benighn intracranial hypertension - theres people out there that have what ive got that is also cancerous - so i have something to be thankfull for!
ive been through all that - ive had no end of lumber punctures infact ive had that many they had to stop doing them in fear that any more could leave me paralysed - ive allready got curviture of the spine!
theres 2 main drugs that they use to treat it and thats acetazalomide also known as diamox or tapamax and im intoloerant to them both so for the last couple of months ive been left untreated!
my doctor has been talking me into having the vp shunt that charlotte was talking about in the 1st video but if you look that up on the internet it seems more hassle than its worth - ppl that have had this shunt 9 times out of 10 end up back in hospital because its blocked - it even got rapped round one girls heart so ive been telling him i dont want this shunt - if its my very last chance of saving my eyes i will have it but while theres options untried im not having it and that whats lead me down the line of fighting for this octreotide!
people who see me wouldnt think theres much wrong untill you see me have a dizzy spell or with sun glasses on the whole time because the outside light is too bright for my eyes! i think ive learned to live with the head aches - some days there worse than others and i cant get out of bed with them - i even ended up back in hospital once because my head hurt that much!
i will still be having my wls even if this drugs cures it in 6 months time because the doctors say is most common in young obese girls, its a rare desease but the ppl whom do have it are mostly overweight so they are putting it down to my weight.
im so glad ive got the chance to try this octreotide... theres a few out there that havent got this chance, i just hope it works coz the VP Shunt scares me!
funny isnt it - im excited about my bypass and im not scared 1 bit.. im looking forward to it - but talk about a shunt and im kakin my pants, honestly!
check me out... i can go on forever!
seem a little better now with the sickness so hopefully its just because its new to me and my body will get used to it! tell you something tho.....ive not had the ringing in my ears today, maybe thats a good sign? only time will tell!
thanks to you all for your continued support!
luv ya lots like jelly tots!
i feel very lucky actually that i dint have to go what this girls been through to get it x
