Starting to get really fed up!

[charliegirl]

That's great Lisa is does help to have support from your nearest and dearest. Unfortunately for me I am unable to tell my daughter as she is not wanting me in her life just now. My son knows about it and he is supporting me although he is worried bless him. I keep him informed of things so he has less to worry about as he wont ask and tends to bottle things in. My sister also supports me but lives a long way away thats why I have you guys on here ah..... xx

 

[elffie01]

Hi Maxine your BP will help towards your referral!....I have been emailing Mr Ammoris secretary she is so lovely given her the details of the PCT lady I speak to so she can go direct for the jugular when sending over my referral lol.. you sound so positive maxine your a tonic for me xx

YEAH I have a use at last lol

 

[Olsbols]

The biggest thing for me is that I told my mum my intentions re: banding today and expected her to say its too extreme and i was stupid. I am so chuffed she is behind me 100%, i honestly feel amazing, she said she's seen me struggle with this for too long now and i deserve a break.

That's fab to hear, baba... :hug99:

My mum said the same thing to me when I sat down to discuss my surgical options. Really pleased you have some support

x

 

[mintball]

after my doctor reassuring me that the clinic at chorley does exist, i had a message left on my phone yesterday saying . . . can you phone us back in two weeks because thats how long a referral takes to "bounce" back to us if its gone to the wrong place!!!

Do you think that means thay may now be backtracking a tad?!?!!?

Oh well, at least life is never boring or predictable

Lisa x x x

 

[charliegirl]

Hi Lisa, my computor has been broken and only just able to get back on now. You seem to be getting the run around like I did. I was at my GP's this morning as I have been off work for a few weeks with mild depression he has put this down to lack of sleep due to the sleep apnea and has documented that on my sick note. I will be remembering that piece of information in case I have to appeal to the PCT. He strongly believes that if I get the bypass it will help my current problems so make sure you make a note of everything. I have kept a running diary of dates when things happened etc. Dont lose heart its a tough battle but the results are well worth it....xx

 

[mintball]

thanks linda, i will.

Just pigged off that due to someone else's lack of knowledge, my journey has been extended. I know its not by much but you know how it feels, every day is a day closer and then all of a sudden...bang another few weeks onto your wait!

On the bright side though, every day that passes is another to confirm to me that i'm doing the right thing and if i wasn't 100% sure when i set out, well i am now.

Maybe its fate and cos i was hesitant at the beginning thinking it was a drastic solution, now i am more than sure its what i want and if i'd got an apoointment straight away and they'd seen any kind of doubt, they'd have shelved my request.

I might be clutching at straws but you have to try to look at the bright side of everything or else you'd give up

Lisa x x

 

[charliegirl]

Totally agree Lisa, I told my GP this morning that getting all the relevant info together for the PCT was very stressful and that the majority of NHS staff that I have come up against have been useless, the only one that has helped has been Mr Ammoris secretary and if there were more like her we would not have to fight as hard...keep your chin up chick....are you going to the meet at the Trafford centre in November? It would be good to meet if you can make it....xx

 

[Olsbols]

CG and MB... just want to say I am keeping my fingers crossed that things speed up for you both and you get what you want... and need

x

 

[charliegirl]

Thanks so much Ols, Mr Ammori's secretary was on the phone earlier and she said I meet the criteria and they should say yes so I am a little more hopeful.....xx

 

[tammy]

Fab news Linda, no one will argue with the wonderful mr ammori!!! just hope you hear something soon hun xx

 

[mintball]

Linda, what date in November at Trafford Centre?

Where is Mr Ammori based at?

Think i'll just hold off for a week then phone Dr back and see where they're up to.

Sounds hopeful for you though Linda, another step closer

Thanks Ols, this site makes things so much easier to cope with.

Lisa x x x

 

[charliegirl]

Hi Lisa its the 15 November there is a thread on here somewhere Shel is organising it. Mr Ammori works out of Spire Hospital, Alexandria Hospital and Manchester Royal. I saw him at his private clinic the Riverside. I still feel on an emotional rollercoaster, one minute I think yes I will get this and another I think it wont happen for me. I know the PCT think the sleep apnea is very helpful and I have seen a copy of the letter that has been sent to them so fingers crossed....but in the mean time my weight still goes up!!!....xx

 

[bodybeautiful]

Hiya guys,
Just wanted to say - do not wait for letters if you are under DR Ammorri. I have never once had a letter, i have just kept phoning..Dr Ammorri secretary is lovely but she tells me the system has changed and it's all done by the nurse (kath)...I have met with kath last week and you have to sit though a slide show to see if it's still what you want. After all that she then books you it with her and Dr Ammorri for the following week, but says it will be followed up with a letter...Guess what a letter never came,,,,I have had a phone call from spire this morning saying could i please go and see the surgeon tomorrow....i am so excited but very nervous......So to everybody who is under spire Dr Ammori please don't wait by your letter box like i did.....they will just ring....it has happened to a couple of people i know....i will let you know how i get on

take care all xxx

 

[mintball]

thanks Linda,

i phoned a random consultant secretary at a manchester hospital that does the surgery just to ask about the procedure as my Dr was unsure and had sent a letter to the wrong place. The woman i spoke to offered to take my GP details and give them a ring just to advise them. I hope i haven't pigged my doctor off but at least it will get things moving in the right direction and they won't mess about cos they know i'm on their back if nothing else.


good luck bb

Lisa x x x

 

[charliegirl]

Hi Lisa I dont think it will pig your GP off, they are learning the system just like we are and I am sure they welcome any help that comes there way, we wont be the first nor the last to ask for this proceedure and it will help them in the future. Things would be much easier for all concerned if they all worked the same way!.

Hang on in there and try not to stress too much its a long road ahead....xx

 

[charliegirl]

Hiya guys,
Just wanted to say - do not wait for letters if you are under DR Ammorri. I have never once had a letter, i have just kept phoning..Dr Ammorri secretary is lovely but she tells me the system has changed and it's all done by the nurse (kath)...I have met with kath last week and you have to sit though a slide show to see if it's still what you want. After all that she then books you it with her and Dr Ammorri for the following week, but says it will be followed up with a letter...Guess what a letter never came,,,,I have had a phone call from spire this morning saying could i please go and see the surgeon tomorrow....i am so excited but very nervous......So to everybody who is under spire Dr Ammori please don't wait by your letter box like i did.....they will just ring....it has happened to a couple of people i know....i will let you know how i get on

take care all xxx

Hi BB sorry to hear that you have not had much luck I have to say Mr Ammori and his secretary Louisa have been the only part of this process that has been as it should be. I have had regular contact with louisa, had a quick appointment to see Mr Ammori (At his private clinic despite me being NHS). I saw him last tuesday and the letter requesting funding was faxed through to the PCT last friday! I cant really fault that. Are you going private or NHS? Good luck for tomorrow Mr Ammori is really nice and down to earth, he has a small fan club on here as he is one of the best surgeons in the country so you will be in safe hands...xx

 

[tammy]

Kath Rothwell the bariatric nurse is great. she has also had the bypass done around 3 years ago so she is an expert so to speak. just kee phoning them they will soon get the picture that you are not all going to go away and plan to fight for your surgery xx

 

[charliegirl]

I have just spoken to Dr New's secretary as he had said he wanted to see me two weeks after I had seen Mr Ammori but his letter said different. Jane has said that as it has been referred to the PCT and I meet the NICE criteria they will leave it there for now. (He has no appointments till January 2009 but he is having new clinics added). She further said sleep apena of any degree mild, severe or chronic is still sleep apnea at the end of the day. She ended up by saying if a consultant or a surgeon has stated that surgery is the best way forward he expects to get approval and funding to carry it out. So I feel a little more hopefuly but as I am sure many of you will have experienced I will still worry!!!!! In fact I will worry until I wake up and they confirm that the bypass has been done unlike poor Di who woke up and nothing had been done. So please tolerate my moaning and kick me up the bum.....and I hope this also helps others that are starting out on this journey....xx

 

[mintball]

gonna phone my dr tomorrow to see if anything has happened yet, once i'm set on the road i'll back off a bit. Just need it in my head that it is heading the right direction.

I just wish I had some advice to give others, cos i feel i'm getting lots of helpful stuff from you guys and giving nothing back. I'll just have to make sure i stay on this forum as i go along and soon i'll be further down the line than others and can help them maybe

Lisa x x x

Lisa x x x

 

[charliegirl]

Hi Lisa you can give advice as you go along and find something new out and you can give people support if only a shoulder to cry on sometimes....believe me though I kept saying I would back off with the authorities and it never happened lol....are you going to go to the meet in November? It will be good and help you put faces to names etc....xx