god don't ask!!!! still no firm diagnosis but they given us some biopsie results which indicate a problem. something called IGA deficency which is to do with the ability to fight infection in her gut. this can also be detected in people with ceoliacs diseas. but given that she is already on a wheat, gluton, dairy and milk free diet due to intolerances it is unlikely to be this!
she continues to lose weight and although she is nearly 2 she is half the size she should be!! (good things come in small packages apparently!!!)
anyway to cut a long story short we have started her on some new medication, continue with the gastrostomy feeding and see a child psycholigist!!! (at 2 doesn't look good for the future LOL)) she is just full of personality and character really like me!!!!
thanks for asking shel, and let me know when you are all next planning to meet x