I read ur updates in total shock and disbelief that they could do this to u!! I think ur handling this really well better than I could by far, and ur certainly not in the wrong for wanting ur questions answered!! Please keep on at pals and fight for some phycological help, Im daft but I'd probably say if u don't do something quick il tell the papers my terrible story. From past experience nhs don't like bad publicity and ur story is terrible hun. I really hope everything works out well for u and soon xxx
-
Hi, If you cannot get into the site, be sure to Contact Us. Please be advised that the app is no longer in use!
Leaking like the Titanic..
- Thread starter scooter81
- Start date
-
- Tags
- leak sleeve gastrectomy stent
I'm so sorry you are going through this.
You need to threaten them with a negligence claim, I don't know a lot about it, but I am almost sure an appropriate solicitor would be more than happy to take your case on. Probably on a no win no fee basis.
Do some Internet research and then at your next appointment mention that you now have a solicitor looking after your affairs and you will be bringing them along to your next appointments as they feel you have a strong case for negligence, stress to them 'obviously if I can see we are making progress I won't go further with the claim, however at the moment I feel everything is standing still and I am getting worse. In fact call them up and ask if you can take a solicitor with you next Fri. It might just scare them into getting you sorted. And if you don't manage to get one to go with you take a tape recorder or detailed notes next time so they know you mean business.
Sorry for long post but I want to grab them by the balls for you and help you out!! It's poor poor care and they should be falling over themselves to get this sorted for you.
Chin up chicken xxxx
You need to threaten them with a negligence claim, I don't know a lot about it, but I am almost sure an appropriate solicitor would be more than happy to take your case on. Probably on a no win no fee basis.
Do some Internet research and then at your next appointment mention that you now have a solicitor looking after your affairs and you will be bringing them along to your next appointments as they feel you have a strong case for negligence, stress to them 'obviously if I can see we are making progress I won't go further with the claim, however at the moment I feel everything is standing still and I am getting worse. In fact call them up and ask if you can take a solicitor with you next Fri. It might just scare them into getting you sorted. And if you don't manage to get one to go with you take a tape recorder or detailed notes next time so they know you mean business.
Sorry for long post but I want to grab them by the balls for you and help you out!! It's poor poor care and they should be falling over themselves to get this sorted for you.
Chin up chicken xxxx
borogirl
Active Member
I agree that a strongly worded solicitors letter / email sent directly to the Chief Executive of the Hospital and also to the Royal College of Surgeons (go on the web there will be an address) should speed up the care and interest that you deserve. I would threaten them that you will go to the Care Quality Commission. I really wish you all the best. xx
scooter81
Walking Disaster Area
Thanks everyone for your comments and support. I have already been in talks with my solicitor regarding negligence, and she feels i have a very strong case. Im just reluctant to start anything while still receiving "care" or lack of..
i woke up this morning half expecting to see the stoma bag full as previous - off clear fluid, foamy. Nothing. All that was in there was 25ml of greeny stuff the hospital said yesterday is puss and no other fluids. A good sign? I hope so. Only thing is, Im spitting up bubbly foam constantly. As soon as i empty my mouth I have to spit again. Swallowing feels like Im swallowing razor blades, and instantly makes me heave a clear fluid that has the same bitterness as pineapple juice/acid.
The consultant yesterday said if any probs to call hospital and ask for him immediately. Ive called today because Im concerned nothing is coming out where the drain was and asked to speak to him as the sicky feeling is stronger today, to be told that there is no way they would ever transfer a patient to a consultant. Ive spoken to the ward who cared for me, theyve spoken to the registrar who has said to come into the hospital at 9pm tonight to see a member of the bariatric team whos on nights. They cant really comment on what to do. No bariatric nurse on that ward today to give advice.
I had my op in feb, on 30th march the bariatric ward was closed due to lack of funding and remains closed. So it looks like Ill be going back to the hospital this evening as I cant go on feeling this vile. I hope its a sign of healing, and not that Im filling up with fluid and infection again.
i woke up this morning half expecting to see the stoma bag full as previous - off clear fluid, foamy. Nothing. All that was in there was 25ml of greeny stuff the hospital said yesterday is puss and no other fluids. A good sign? I hope so. Only thing is, Im spitting up bubbly foam constantly. As soon as i empty my mouth I have to spit again. Swallowing feels like Im swallowing razor blades, and instantly makes me heave a clear fluid that has the same bitterness as pineapple juice/acid.
The consultant yesterday said if any probs to call hospital and ask for him immediately. Ive called today because Im concerned nothing is coming out where the drain was and asked to speak to him as the sicky feeling is stronger today, to be told that there is no way they would ever transfer a patient to a consultant. Ive spoken to the ward who cared for me, theyve spoken to the registrar who has said to come into the hospital at 9pm tonight to see a member of the bariatric team whos on nights. They cant really comment on what to do. No bariatric nurse on that ward today to give advice.
I had my op in feb, on 30th march the bariatric ward was closed due to lack of funding and remains closed. So it looks like Ill be going back to the hospital this evening as I cant go on feeling this vile. I hope its a sign of healing, and not that Im filling up with fluid and infection again.
chrisa
New Member
My goodness Scooter how much more can 1 person have to go through, you are 1 brave lady and i take my hat of to you. You Must be absolutely fed up, my siser in law had a similar problem but not due to wls, due to a bowel condition after being admittd 3 times and kept for a week each time they decided she had chrons disease. The y operated and thought all was well, the stitches burst and her bowel came out, was rushed back to theatre, had it repaire but couldnt close the wound, she was attched to a machine which constantly vacuumed puss and other things from the open wound which was bout 2" wide and 10" long she has been in so much pain she had this done last August when i had my bypass, she has just gone bak to work this week. I t ahs taken ages to heal and she still has sites of boil like area under the skin which fester upto the top of the skin and burst, they then discoverd they had left stitches in and had another couple of bouts of infections, finally they removed the offending stitches and has healed rather well considering, however she yesterday has had part of it discharging puss again, she has had more antibiotics than we ' ve had hot dinners, poor lass has been through the mill just like you it must be getting you down. We are all here for you to vent your anger and frustration when ever you need to its shocking you ahve had to endure this and are still enduring it hope something gets sorted this evening. xx
angiemason
New Member
i hope you got on ok at the hospital xx take care
shelleymarie
New Member
Hey Scooter, like everyone else my jaw hit the floor reading this, you have been treated appallingly. I understand mistakes happen, that complications happen. I've read about several to make sure I know what I'm risking but you seem to have had a complete case of neglect and lack of respect through the whole thing. From your surgeon right down to your GP. As a patient you are entitled to know everything they are doing to you, so the fact they used non biodegradable stents when you were told they would must mean you have a case against them, and I know that is only the tip of the iceberg so to speak. I have to say the bit that really made my blood boil is that when you let them know how unhappy you were all they did was tell you not to get upset as it will affect your recovery, and you were just upset because you couldn't eat. What heartless ***** I hope when you are starting to feel better you make sure they are made to suffer the consequences of their poor care. I don't know if it is possible but is there another big hospital in your area? could you go to them? I'm not sure if that is ever possible.
Hope you are doing better tonight and getting better care. Let us know how you are getting on when you up to it. Take care x
Hope you are doing better tonight and getting better care. Let us know how you are getting on when you up to it. Take care x
Andy1968
Member
This setback has really got to me....I mean how much more rubbish do you ahve to take fgs?
All i can say is that i hope above all hope you get sorted soon and on the road-finally- to recovery instead of being treated like a 2nd class citizen. You are one strong willed lady and we're all behind you here.It's one thing having a few complications...but the way you've been treated is nothing short of despicable.
Take care
Andy x
scooter81
Walking Disaster Area
Back in hospital..
Hi everyone, sorry Ive not been around, but after my last post I have been readmitted into hospital. It appears I am now having a reaction to the stents in place which is causing the sickness and I have been advised that these need to come out ASAP.
After I was admitted, I was sent to have a CT Scan, waited over an hour to be told I couldnt have one because Id had one 3 weeks prior and had my quota allowed in a selected time frame. So the aim of the scan to detect where the fluid was going to, had I an internal collection etc.. was foiled. Instead I had another gastrograffin swallow ~(hey it was a drink, despite making me hurl afterwards). I was advised by my team that I am still leaking and that the stents in place are only redirecting approx 60% of fluid swallowed into the stomach, and 40% is going down the side of the stent into the leak site. So Ive had all these stents fitted and theyre not positioned correctly, and theyre not directing the fluid as they should so the past 10 weeks have been a waste of everyones time and a needless heartache.
I was advised 12 days ago that I would have to goto endoscopic theatre this coming monday to have them removed, and they would glue the leak site and clip it to seal it off. On tuesday this week, my surgeon came and confirmed it would be monday lunch time that the procedure would take place and they would try help with the continual sickness to help get me home for the weekend.
I have been given cyclizine, andanzatron (?) and metroclopazide to cope with the sickness, and morphine for the pain but its not helping.
Wednesday morning my surgeon came to see me again and advised that they dont think they would be able to remove the stents by endoscopy, if they get them out it may cause a further leak or increase the current leak and leave them with no choice but to open me up to seal the leak and they wouldnt be able to do that. So surgery is off for monday, and the master plan is now that I will have to goto theatre in 4-6 weeks and I have to remain in hospital during this time.
This is due to having to wait for scar tissue from previous procedures not being viable enough to be worked with, so if they opened me up now the tissue would be unworkable and they wouldnt be able to staple, sew or glue me back together properly.
this procedure involves opening me up, unpicking the staples around the stomach, taking the stents out, and then restapling the stomach back together. My bowel will be stitched into the opening where the leak is to seal that off and hopefully put an end to everything.
Crushed is an understatement, as is the word devestated but I cant do anything. Its been unbearable this week with the heat, not being able to swill my mouth, take a drink. Im still 100% nil by mouth and continually sick.
Yesterday they cancelled my weekend leave and told me as they cant control my sickness in hospital and am not able to tolerate my feed via NJ tube I cant go home. Having had a rant this morning theyve agreed to send me home for a few hours for a change of scenery.
With regards to the Nutricia feed through the NJ, I cant tolerate the protein plus, Ive been changed to Nutricia Energy and I cant tolerate this either. Ive been waiting for the dieticien to come see me since Tuesday as Ive refused to have the feed 24/7 as all I do is sit with my head in a sick bowl all day and all night. Oddly enough since I havent had the feed the sickness has lessened, however Im still being violently ill.
thursday Doctors fitted a syringe driver into my stomach to administer metroclopazide at a continual rate throughout the day to try lessen the sickness. Its had no effect. I was forced to wait by my hospital bed waiting for the dieticien AND a counciller (psychiatric nurse) to come talk to me about the feed and the whole situation, but nobody came. I like to wonder round the hospital gardens, but again yesterday I was grounded to my bed waiting for the dieticien and the nurse, but again, nobody showed up, they cant come until monday.
After having a rant today, they let me home for a few hours, and being able to play here in the garden with my nieces and nephew is taking my mind off things. just dam this glorious weather as I cant have a nice glass of water or icecream which the kids keep trying to feed me.
Thank god I have a wonderful family, and support from you guys. Thanks.. x
Hi everyone, sorry Ive not been around, but after my last post I have been readmitted into hospital. It appears I am now having a reaction to the stents in place which is causing the sickness and I have been advised that these need to come out ASAP.
After I was admitted, I was sent to have a CT Scan, waited over an hour to be told I couldnt have one because Id had one 3 weeks prior and had my quota allowed in a selected time frame. So the aim of the scan to detect where the fluid was going to, had I an internal collection etc.. was foiled. Instead I had another gastrograffin swallow ~(hey it was a drink, despite making me hurl afterwards). I was advised by my team that I am still leaking and that the stents in place are only redirecting approx 60% of fluid swallowed into the stomach, and 40% is going down the side of the stent into the leak site. So Ive had all these stents fitted and theyre not positioned correctly, and theyre not directing the fluid as they should so the past 10 weeks have been a waste of everyones time and a needless heartache.
I was advised 12 days ago that I would have to goto endoscopic theatre this coming monday to have them removed, and they would glue the leak site and clip it to seal it off. On tuesday this week, my surgeon came and confirmed it would be monday lunch time that the procedure would take place and they would try help with the continual sickness to help get me home for the weekend.
I have been given cyclizine, andanzatron (?) and metroclopazide to cope with the sickness, and morphine for the pain but its not helping.
Wednesday morning my surgeon came to see me again and advised that they dont think they would be able to remove the stents by endoscopy, if they get them out it may cause a further leak or increase the current leak and leave them with no choice but to open me up to seal the leak and they wouldnt be able to do that. So surgery is off for monday, and the master plan is now that I will have to goto theatre in 4-6 weeks and I have to remain in hospital during this time.
This is due to having to wait for scar tissue from previous procedures not being viable enough to be worked with, so if they opened me up now the tissue would be unworkable and they wouldnt be able to staple, sew or glue me back together properly.
this procedure involves opening me up, unpicking the staples around the stomach, taking the stents out, and then restapling the stomach back together. My bowel will be stitched into the opening where the leak is to seal that off and hopefully put an end to everything.
Crushed is an understatement, as is the word devestated but I cant do anything. Its been unbearable this week with the heat, not being able to swill my mouth, take a drink. Im still 100% nil by mouth and continually sick.
Yesterday they cancelled my weekend leave and told me as they cant control my sickness in hospital and am not able to tolerate my feed via NJ tube I cant go home. Having had a rant this morning theyve agreed to send me home for a few hours for a change of scenery.
With regards to the Nutricia feed through the NJ, I cant tolerate the protein plus, Ive been changed to Nutricia Energy and I cant tolerate this either. Ive been waiting for the dieticien to come see me since Tuesday as Ive refused to have the feed 24/7 as all I do is sit with my head in a sick bowl all day and all night. Oddly enough since I havent had the feed the sickness has lessened, however Im still being violently ill.
thursday Doctors fitted a syringe driver into my stomach to administer metroclopazide at a continual rate throughout the day to try lessen the sickness. Its had no effect. I was forced to wait by my hospital bed waiting for the dieticien AND a counciller (psychiatric nurse) to come talk to me about the feed and the whole situation, but nobody came. I like to wonder round the hospital gardens, but again yesterday I was grounded to my bed waiting for the dieticien and the nurse, but again, nobody showed up, they cant come until monday.
After having a rant today, they let me home for a few hours, and being able to play here in the garden with my nieces and nephew is taking my mind off things. just dam this glorious weather as I cant have a nice glass of water or icecream which the kids keep trying to feed me.
Thank god I have a wonderful family, and support from you guys. Thanks.. x
Evenstarr
New Member
Oh Scooter you poor thing,we were all hoping for good news from you
I can't even begin to imagine how crushed you must be feeling after all the carry on you've been having.
It's beyond belief how shabbily you've been treated and obviously reflects very pooly on your hospital.
Hang on in there girl, we are all rooting for you and your family will be too.
sending you lots of love and ((gentle hugs))
Em xxxx
I can't even begin to imagine how crushed you must be feeling after all the carry on you've been having.
It's beyond belief how shabbily you've been treated and obviously reflects very pooly on your hospital.
Hang on in there girl, we are all rooting for you and your family will be too.
sending you lots of love and ((gentle hugs))
Em xxxx
clairyb
New Member
Words fail me.....Im gobstruck........how you are coping is beyond me I truly hope that something is done pronto and you can start to recover! I take my hat off to you, you are one brave lady. And I think you should take this as high as you can to complain, when you feel better of course. You have been treated badly to put it mildly. xx
I truly hope that something is done pronto and you can start to recover! I take my hat off to you, you are one brave lady. And I think you should take this as high as you can to complain, when you feel better of course. You have been treated badly to put it mildly. xx
Sharonimo
Sleeve to Bypass
Medical negligence / clinical negligence?
Hi Scooter,
I was going to PM you these links but as you are a fairly new member with only 23 posts PM (private messaging) is not yet possible.
I am going for an interview next week at a Devon law firm which happens to cover medical negligence as one of its areas of law. Whilst doing my research for the interview, I have read all about their medical / clinical negligence team, and on their website they have several links that might help answer certain questions for you such as:
-- do I actually have a claim for medical negligence? and
-- how to fund medical negligence lawsuits
These are the links:
About medical claims
Medical negligence FAQs Useful information
Medical negligence: what can YOU do Useful information
Alternatives to litigation Useful information
Useful links Useful information
Funding a medical claim
I realise that if you do choose to pursue this course of action you may want to find a firm of solicitors closer to where you live. As I do not know what law firm that might be, perhaps you could contact one of the team at Michelmores and just ask the very brief question, which law firms cover medical negligence in your area.
The team
Several of their lawyers have come from NHS / nursing / clinical backgrounds before transferring into law (in particular: Bernadette McGhie, Angie Maxwell and Alison Starkey).
I realise this is a course of action you may or may not want to pursue, but thought I would offer the info anyway as it happens that thru chance I have been given an opportunity to visit / be interviewed by / possibly work for a law firm who specialise in this area of law.
Best wishes with whatever you decide.
Hi Scooter,
I was going to PM you these links but as you are a fairly new member with only 23 posts PM (private messaging) is not yet possible.
I am going for an interview next week at a Devon law firm which happens to cover medical negligence as one of its areas of law. Whilst doing my research for the interview, I have read all about their medical / clinical negligence team, and on their website they have several links that might help answer certain questions for you such as:
-- do I actually have a claim for medical negligence? and
-- how to fund medical negligence lawsuits
These are the links:
About medical claims
Medical negligence FAQs Useful information
Medical negligence: what can YOU do Useful information
Alternatives to litigation Useful information
Useful links Useful information
Funding a medical claim
I realise that if you do choose to pursue this course of action you may want to find a firm of solicitors closer to where you live. As I do not know what law firm that might be, perhaps you could contact one of the team at Michelmores and just ask the very brief question, which law firms cover medical negligence in your area.
The team
Several of their lawyers have come from NHS / nursing / clinical backgrounds before transferring into law (in particular: Bernadette McGhie, Angie Maxwell and Alison Starkey).
I realise this is a course of action you may or may not want to pursue, but thought I would offer the info anyway as it happens that thru chance I have been given an opportunity to visit / be interviewed by / possibly work for a law firm who specialise in this area of law.
Best wishes with whatever you decide.
