Nobody to relate to anymore on this site..just really fed up with abdomen problems

[Llora]

Sorry i just jump in here. I am just a little baby on this journey! But i wanted to thank every single longtermer for staying around and sharing their experiences! Good or bad, exciting moments or moaning about things.. That is all important to me.

When i joined this site i was expecting two things from it.

1. To find information and real life experience from people who had their surgeries, to see how people do later in their lives.. How do they maintain and how do they deal with problems or complications post op. So here long in put from longtermers is invaluable! And i wish there were more of long termers sticking around!

2. I needed to find people who are or were going through the same or similar things like i do.. As in real life i have noone with such severe weight problems.. And i just felt noone understood what is/was going on with me.. And till this day people just simply dont understand most of the things i go through unless they have been there or they are going through the same.

Yes i dont reply to lots of threads that i read.. But just because i feel i am no expert and i am still too fresh to have oppinion or know certain things! so lots of the time i read, read, read, read... And like a sponge try and soak the information.. Because maybe one day i will have ecactly the same issue myself...

Thank you everyone for sharing your experiences!

 

[emma-louise]

Sorry i just jump in here. I am just a little baby on this journey! But i wanted to thank every single longtermer for staying around and sharing their experiences! Good or bad, exciting moments or moaning about things.. That is all important to me. When i joined this site i was expecting two things from it. 1. To find information and real life experience from people who had their surgeries, to see how people do later in their lives.. How do they maintain and how do they deal with problems or complications post op. So here long in put from longtermers is invaluable! And i wish there were more of long termers sticking around! 2. I needed to find people who are or were going through the same or similar things like i do.. As in real life i have noone with such severe weight problems.. And i just felt noone understood what is/was going on with me.. And till this day people just simply dont understand most of the things i go through unless they have been there or they are going through the same. Yes i dont reply to lots of threads that i read.. But just because i feel i am no expert and i am still too fresh to have oppinion or know certain things! so lots of the time i read, read, read, read... And like a sponge try and soak the information.. Because maybe one day i will have ecactly the same issue myself... Thank you everyone for sharing your experiences!

Llora have you gone on youtube ?
I found lots of interesting things on there to watch...
And also visit american obesity forums as they are far more clued up than we are in the uk.

 

[marcusbm]

Don't worry about it. The whole point of the forum is the share both successes and frustrations. You're certainly allowed to not be in the best of moods when things don't go perfectly. It's a roller-coaster for all of us - sometimes it's an easy one you'd take a 5yo on; sometimes it's one of those ones that scares the **** out of a hardened teenager.

Long termers with complications are much more likely to stick around - I mean I'm 7.5 years post op, 7 months post op and 1 month post op - take your pick. I feel I'm on an easier roller-coaster than I was eight months ago (a roller-coaster that was about to crash but I managed to get off just in time).

Yet I'm still starting my post-bypass journey while I've been toughened by a much longer journey. Keeping with analogies it's like I started with a journey on a cruise liner but found out it was poorly maintained garbage scow, fortunately the coastguard arrived in time and I spent a while on land before going on to a new ship - I've yet to fully realise what type of ship it is. And that's where experienced 'seafarers' can help me.

I think that's enough of the theme park and naval analogies - Ahoy!

 

[emma-louise]

Don't worry about it. The whole point of the forum is the share both successes and frustrations. You're certainly allowed to not be in the best of moods when things don't go perfectly. It's a roller-coaster for all of us - sometimes it's an easy one you'd take a 5yo on; sometimes it's one of those ones that scares the **** out of a hardened teenager. Long termers with complications are much more likely to stick around - I mean I'm 7.5 years post op, 7 months post op and 1 month post op - take your pick. I feel I'm on an easier roller-coaster than I was eight months ago (a roller-coaster that was about to crash but I managed to get off just in time). Yet I'm still starting my post-bypass journey while I've been toughened by a much longer journey. Keeping with analogies it's like I started with a journey on a cruise liner but found out it was poorly maintained garbage scow, fortunately the coastguard arrived in time and I spent a while on land before going on to a new ship - I've yet to fully realise what type of ship it is. And that's where experienced 'seafarers' can help me. I think that's enough of the theme park and naval analogies - Ahoy!

Lol...that made me laugh Marcus...cheers matey!

 

[emma-louise]

Does anyone know the after effects of a monofer iron infusion?
I feel awful...had it Wednesday...came home..fine
Thursday...fine
Friday today...around dinner not so good

 

[chrisa]

Aww dear xxx have you google dit? xx

 

[marcusbm]

The official list of side effects:

Like all medicines Monofer can cause side effects, although not everybody gets them.
The following side effects may happen with this medicine:

You should tell your doctor or nurse immediately so that they can stop the infusion
if necessary, if you experience symptoms of angioedema, such as

• swollen face, tongue or pharynx
• difficulty to swallow
• hives and difficulties to breath

Allergic reactions (affecting less than 1 in 100 people)

If you have an allergic reaction to Monofer tell your doctor or nurse straight away so that they can stop it if necessary. The signs of this may include:

• shortness of breath
• nettle rash or hives, flushing, rashes, itching
• nausea and shivering

Other side-effects include:

Uncommon (affects 1 to 10 users in 1,000):

• blurred vision
• numbness
• hoarseness
• pain in and around the stomach (abdominal pain), being sick (vomiting),
constipation
• cramps
• feeling hot (or fever)
• soreness and swelling (inflammation) near the injection site

Rare (affects 1 to 10 users in 10,000):

• uneven (irregular) heart beat, high pulse rate
• chest pain
• loss of consciousness
• seizure (fits)
• dizziness, restlessness, fatigue
• diarrhoea, sweating, tremor
• angioedema a type of severe allergic reaction, signs may include swelling
• pain in your muscles or joints
• low blood pressure
• altered mental status

Very rare (affects less than 1 user in 10,000):

• in pregnancy, the baby’s heart rate may slow.
• palpitations
• lower red blood cells than usual (this would show up in some blood tests)
• headache
• unusual feeling on the surface of your body
• temporary deafness
• raised blood pressure

If any of the side effects gets serious, or if you notice any side effects not listed in this
leaflet, please tell your doctor or pharmacist.

 

[emma-louise]

The official list of side effects: Like all medicines Monofer can cause side effects, although not everybody gets them. The following side effects may happen with this medicine: You should tell your doctor or nurse immediately so that they can stop the infusion if necessary, if you experience symptoms of angioedema, such as o swollen face, tongue or pharynx o difficulty to swallow o hives and difficulties to breath Allergic reactions (affecting less than 1 in 100 people) If you have an allergic reaction to Monofer tell your doctor or nurse straight away so that they can stop it if necessary. The signs of this may include: o shortness of breath o nettle rash or hives, flushing, rashes, itching o nausea and shivering Other side-effects include: Uncommon (affects 1 to 10 users in 1,000): o blurred vision o numbness o hoarseness o pain in and around the stomach (abdominal pain), being sick (vomiting), constipation o cramps o feeling hot (or fever) o soreness and swelling (inflammation) near the injection site Rare (affects 1 to 10 users in 10,000): o uneven (irregular) heart beat, high pulse rate o chest pain o loss of consciousness o seizure (fits) o dizziness, restlessness, fatigue o diarrhoea, sweating, tremor o angioedema a type of severe allergic reaction, signs may include swelling o pain in your muscles or joints o low blood pressure o altered mental status Very rare (affects less than 1 user in 10,000): o in pregnancy, the baby's heart rate may slow. o palpitations o lower red blood cells than usual (this would show up in some blood tests) o headache o unusual feeling on the surface of your body o temporary deafness o raised blood pressure If any of the side effects gets serious, or if you notice any side effects not listed in this leaflet, please tell your doctor or pharmacist.

Thanks Marcus.

I'm just going to rest and take it easy till it passes..i

 

[marcusbm]

I was thinking last night how WLS is related to power.

When things go great we feel empowered however when things go wrong we feel powerless.

It's easy to feel powerless when things are going well that nothing can go wrong - or at least dismiss the thought. However when something goes just slightly wrong then support is both needed and greatly appreciated from those who have gone through the same situation. It's reassuring, it's empowering.

Ultimately surgery is a way of taking power by giving power away. The desired consequence is to grow in power but we all know that doesn't always happen in its entirety.

 

[kurstywursty]

It does indeed. I'm almost six years out and don't often post for me anymore, just stick to the moderating. If I do its in my diary, it seems like no one but those who read it will be remotely interested :cry:

Mazza. I often wonder who does all the hard work on the forum, how it got started, who started it etc

Thank you for being here and ensuring we all have the forum xxxx

 

[emma-louise]

Has anyone on here had an iron infusion and know how long it takes to makes a slight difference?
It's been a week for me now and i feel rough again this morning..like I'm starting with a cold.
I've been more tired since having it done,dropping off to sleep early evenings,I just want to feel a bit more energetic.
Help... :-(

 

[tranquil_butterfly]

Has anyone on here had an iron infusion and know how long it takes to makes a slight difference?
It's been a week for me now and i feel rough again this morning..like I'm starting with a cold.
I've been more tired since having it done,dropping off to sleep early evenings,I just want to feel a bit more energetic.
Help... :-(

I forgot to mention my sister had one last month. They did some blood tests and found her level was so low they called her in to hospital and she was in overnight being treated. She is still very tired and it has got to be at least a month since she had the treatment. Just rest as much as you can - it will take time for the body to adjust.

TBx

 

[emma-louise]

Just thought I'd update..
Today I had an appointment with a baratric surgeon..
I took my hubby in with me as well as a list of questions..
I wanted my hubby to back me up and take in what the doctor was saying incase I got myself in a flap.
The doctor was very good and agreed further investigations was needed...so I'm having a camera through the stomach area.
I told him I was concerned my pains are of a twisting/trapped nature and he said it was best to look around for a twisted/kinked bowel.
He also didn't fob me off when I mentioned a " petersons hernia"...
So off I went to pre op to post my form for a pre-op appointment,and I had a look what the doctor had wrote.
He had wrote what I am afraid I might have..fingers crossed it's not..
He also made me aware they might not get an answer and " I'm afraid it's something you'll have to live with "
It may be something like scar tissue?..I'm no doctor but surely scar tissue wouldn't cause you severe spasms so much you cannot breath...
So at least today I felt I was being listened to..

 

[Yvessa]

At least they're going to do a proper investigation. What do you say when they say ys something you might have to live with?

 

[chrisa]

Well done Emma Louise pleased your hubby backed you up it may have just added bit more weight to the cause. Lets hope they are swift with their investigations. fingrs and toes crossed. xxxx Its an avenue which needs persuing. Take care Emma and keep chatting when you need to x

 

[emma-louise]

At least they're going to do a proper investigation. What do you say when they say ys something you might have to live with?

I didn't know what to say to that...but even my local gp mentioned it could be scar tissue,which happens with all operations.
I really don't know yvessa..I can't bear these pains for life.

 

[emma-louise]

Well done Emma Louise pleased your hubby backed you up it may have just added bit more weight to the cause. Lets hope they are swift with their investigations. fingrs and toes crossed. xxxx Its an avenue which needs persuing. Take care Emma and keep chatting when you need to x

Thanks Chrisa..
Definetly having my hubby in there made a difference...and he told the doctor,it's not normal to bloat to the size of a full term pregnant lady....I'm a bit sad though,more hospital time...I'm just sick and tired of always being there.

 

[chrisa]

I know I can understand that constant pain will grind you down. You are at the point where you have had enough now and its time to bring out the big guns lets hope that something is spotted and they can help in some way. xx

 

[tranquil_butterfly]

I hope the investigations turn something up emma-lousie.

TBx

 

[ThinnerJemima]

My bloating was due to hyponatremia, I was diagnosed just before Christmas. I have a strong saline solution added to my feed and it was an instant cure to being several months up the duff every night which was really sore.