chrisa
New Member
Well all seems to have gone quiet on here again, I know you started a separate post CCPM I responded on it.
How are you doing Emma Louise? Any better today. My tummy showed signs of starting yesterday took the buscopan and sorted it out before it got started. lol xx really pleased else would have spoilt my night out/catch up with old work collegaues.
I think a lot of aftercare has big issues I think they just can't cope with the amount of patients that have been and are coming through the doors also like you said above CCPM the evidence is poor and sometimes our doctors fob us off and then the hospital are too busy and we feel we are suffering unnecessarily which some of us are they stopped a group from our local hospital where my surgery took place which was patient led. They took the group away from the leader and have restarted it with a couple of medical professionals but I don't think it is as helpful as the patient led ones were, a combination would have been good but I think they just have a patient speaker come along each session now and that's about it. Before it was like a self help group but well respected and enjoyably run and people would bring clothes and things along to help out others going down through the changes in size. Self help is how we are thriving must of the time and 1 st hand experience can be great and reassuring that others have the same or very similar issues, suffering alone is never good, but to know someone else is living it with you it certainly makes u feel a little better and able to cope better. x
How are you doing Emma Louise? Any better today. My tummy showed signs of starting yesterday took the buscopan and sorted it out before it got started. lol xx really pleased else would have spoilt my night out/catch up with old work collegaues.
I think a lot of aftercare has big issues I think they just can't cope with the amount of patients that have been and are coming through the doors also like you said above CCPM the evidence is poor and sometimes our doctors fob us off and then the hospital are too busy and we feel we are suffering unnecessarily which some of us are they stopped a group from our local hospital where my surgery took place which was patient led. They took the group away from the leader and have restarted it with a couple of medical professionals but I don't think it is as helpful as the patient led ones were, a combination would have been good but I think they just have a patient speaker come along each session now and that's about it. Before it was like a self help group but well respected and enjoyably run and people would bring clothes and things along to help out others going down through the changes in size. Self help is how we are thriving must of the time and 1 st hand experience can be great and reassuring that others have the same or very similar issues, suffering alone is never good, but to know someone else is living it with you it certainly makes u feel a little better and able to cope better. x