curvycuddles
New Member
Good luck Gerry! x
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Feel a bit of a fraud for being here now...
- Thread starter Gerry
- Start date
Thank you all so much for the words of support everyone. It really means so much.
The funding pannel were due to hear my case last Wednesday. The PCT told me not to call until this week as they wouldn't have the paperwork so wouldn't know themselves. Seems odd when others have managed to find out the same day, but I don't know how their system works and don't have the strength to argue the toss.
Phoned yesterday to speak to the guy who was dealing with my case but he wasn't around. Left a message but no call back.
Just phoned again thismorning and spoke to him. He said he did give his manager a message to give me a call and assumed she had (but she didn't). He tried to get hold of her while I was on the phone but she was in a meeting but he managed to tell her I was calling again and said she will call me as soon as she can.
Not sure what the rest of you read into that but personally I don't think it sounds good. Surely if it was good news he would have been able to tell me. He quite clearly wasn't saying anything. Perhaps he's not allowed to.
Doesn't help that I've woken up with a stiff neck this morning (just another of my lax joint problems so I'm used to it but not the pain which I can never get used to).
I just get the feeling that this is not going to be good news.
Anyway, playing the waiting game now for her to call me back.
Watch this space!
Gerry
:sigh:
The funding pannel were due to hear my case last Wednesday. The PCT told me not to call until this week as they wouldn't have the paperwork so wouldn't know themselves. Seems odd when others have managed to find out the same day, but I don't know how their system works and don't have the strength to argue the toss.
Phoned yesterday to speak to the guy who was dealing with my case but he wasn't around. Left a message but no call back.
Just phoned again thismorning and spoke to him. He said he did give his manager a message to give me a call and assumed she had (but she didn't). He tried to get hold of her while I was on the phone but she was in a meeting but he managed to tell her I was calling again and said she will call me as soon as she can.
Not sure what the rest of you read into that but personally I don't think it sounds good. Surely if it was good news he would have been able to tell me. He quite clearly wasn't saying anything. Perhaps he's not allowed to.
Doesn't help that I've woken up with a stiff neck this morning (just another of my lax joint problems so I'm used to it but not the pain which I can never get used to).
I just get the feeling that this is not going to be good news.
Anyway, playing the waiting game now for her to call me back.
Watch this space!
Gerry
:sigh:
mandy-1975
Regular Member
Sending you some positive thoughts today... and keeping fingers crossed for youxxxxxxxxxxxxx
Thanks Shelbel, I know I may not sound it (pain is making me type through gritted teeth if that makes sense), but I am trying to hope it will be a good outcome. I'd be elated if it is. If it's not then I will want to hide as I will yet again have been made to look like a mug by the NHS for telling others I am doing something then it doesn't come off.
Still no call (anyone get the idea I'm impatient???).
Waiting....waiting....waiting...
Gerry
xx
Still no call (anyone get the idea I'm impatient???).
Waiting....waiting....waiting...
Gerry
xx
mandy-1975
Regular Member
Im impatient for you too Gerry xxxxxxxxxxxxxxxxxx
charliegirl
New Member
Gerry fingers crossed for you I too am inpatient so I know what that feels like. You sound like you have a good case to me. Dont give up.....
Lisa Marie
New Member
Good luck Gerry, really hope and pray it's good news for you.
Thank you everyone. Lovely to know that others show an interest.
I've sat patiently by the phone all day, even taking it in the loo with me and not daring to have a kip in case I miss her call. Still no word from her, so just phoned again. Spoke to the same guy who again went to tell his manager that I was calling yet again. She still says she will call me when she can.
I'm quite confused, as when I spoke to her the first time she was really nice, saying I had a good case etc. Now she seems to be avoiding me for some reason. I told the guy that I have other things resting on the outcome of this which he said he appreciated, but I can understand his position in that it's his manager that I need to speak to, and if she won't do what is being asked of her then there is little he can do. My guess is that she is trying to make me wait to find out via the doctor. If that's the case, why can't she tell him to tell me that and save me sitting around like a stuffed prune all day. Surely they should know by now, the panel met last Wednesday to make their decision.
I'm in so much pain from my stiff neck that I could do with just layng flat and resting it, but haven't wanted to in case I couldn't turn over to get the phone in time.
Don't know what to do now :sigh:
Gerry
xx
I've sat patiently by the phone all day, even taking it in the loo with me and not daring to have a kip in case I miss her call. Still no word from her, so just phoned again. Spoke to the same guy who again went to tell his manager that I was calling yet again. She still says she will call me when she can.
I'm quite confused, as when I spoke to her the first time she was really nice, saying I had a good case etc. Now she seems to be avoiding me for some reason. I told the guy that I have other things resting on the outcome of this which he said he appreciated, but I can understand his position in that it's his manager that I need to speak to, and if she won't do what is being asked of her then there is little he can do. My guess is that she is trying to make me wait to find out via the doctor. If that's the case, why can't she tell him to tell me that and save me sitting around like a stuffed prune all day. Surely they should know by now, the panel met last Wednesday to make their decision.
I'm in so much pain from my stiff neck that I could do with just layng flat and resting it, but haven't wanted to in case I couldn't turn over to get the phone in time.
Don't know what to do now :sigh:
Gerry
xx
Trinaweena
New Member
Hi Gerry,
I have just read through your post and what a terrible time you have had, I cried for you, you are been treat like a political football and it's not FAIR. I am praying that you get your funding, you really deserve it. I have just been given funding for a full TT on the NHS and it was a struggle but the PCT agreed to it on medical terms.I am also disabled with severe spinal problems and hang a overhang of skin and extremly weakened stomach muscles due to 3 caesarians, I suffer terrible infections inbetween my fold and I'm like you and unable to exercise.I found out the decision from my PCT on the same day of the meeting, at first it was "we will review you 3mths to see if the infections are a one off" even though my GP old them it has been happening for a least 2yrs. i was totally devasted and sobbing down the telephone, the lady at the PCT said get your GP to send antoher letter confirming it, which I did the same day as I got in touch with his secretary( my GP has been very supportive) and she faxed the letter the same day I also faxed them another letter of my feelings, how it affects my everyday life etc. this was on the 19/6/8 the lady said ring on monday 23/6/8 and my PCT manager will have anoher look at your case.The lady then rang me on the monday to tell me that the PCT have agreed to fund my operation. I have my op on 9/9/8.
You MUST NOT give in, they really like people to fight for it, unfair I know but you will get it. Remember you are a beautiful person inside and out and don't forget that!!!!
I have all my fingers and toes crossed for you.
Take care
Katrina xxxxx
I have just read through your post and what a terrible time you have had, I cried for you, you are been treat like a political football and it's not FAIR. I am praying that you get your funding, you really deserve it. I have just been given funding for a full TT on the NHS and it was a struggle but the PCT agreed to it on medical terms.I am also disabled with severe spinal problems and hang a overhang of skin and extremly weakened stomach muscles due to 3 caesarians, I suffer terrible infections inbetween my fold and I'm like you and unable to exercise.I found out the decision from my PCT on the same day of the meeting, at first it was "we will review you 3mths to see if the infections are a one off" even though my GP old them it has been happening for a least 2yrs. i was totally devasted and sobbing down the telephone, the lady at the PCT said get your GP to send antoher letter confirming it, which I did the same day as I got in touch with his secretary( my GP has been very supportive) and she faxed the letter the same day I also faxed them another letter of my feelings, how it affects my everyday life etc. this was on the 19/6/8 the lady said ring on monday 23/6/8 and my PCT manager will have anoher look at your case.The lady then rang me on the monday to tell me that the PCT have agreed to fund my operation. I have my op on 9/9/8.
You MUST NOT give in, they really like people to fight for it, unfair I know but you will get it. Remember you are a beautiful person inside and out and don't forget that!!!!
I have all my fingers and toes crossed for you.
Take care
Katrina xxxxx
mandy-1975
Regular Member
Hi Gerry
I am hoping they get back to you today!!! It isn't fair how they are treating you....
Keep us updated
I am hoping they get back to you today!!! It isn't fair how they are treating you....
Keep us updated
Hi everyone........Guess what?????
I GOT IT !!!!!!!!!
:bliss::bliss::talk017:
Can't tell you how relieved I am.
The lady said she knew I was eager to know and could hear that I was really not very well when I answered the phone, and said she would hopefully be able to brighten my day. I knew then that it had been aproved. She said she could tell I sounded much brighter already.
She went on to say that they would be writing to my GP to tell them and that the GP would book me at the hospital. Wonder how long that will take before I hear from them.
Thank you all so much for your interest in this. Looks like I finally have my first foot on the ladder.
Now back to my bed. Can barely move as my stiff neck has become a trapped nerve and is agony.
Gerry
xx
I GOT IT !!!!!!!!!
:bliss::bliss::talk017:
Can't tell you how relieved I am.
The lady said she knew I was eager to know and could hear that I was really not very well when I answered the phone, and said she would hopefully be able to brighten my day. I knew then that it had been aproved. She said she could tell I sounded much brighter already.
She went on to say that they would be writing to my GP to tell them and that the GP would book me at the hospital. Wonder how long that will take before I hear from them.
Thank you all so much for your interest in this. Looks like I finally have my first foot on the ladder.
Now back to my bed. Can barely move as my stiff neck has become a trapped nerve and is agony.
Gerry
xx
mandy-1975
Regular Member
arty0023::bliss::girlpower::talk017::character00238:arty0019::grouphugg:arty0038::clap::character00100::happy036:arty0036:WELL DONE!!!!!!!!!!! THAT IS FANTASTIC NEWS I AM SO PLEASED FOR YOU!!!!!!!!!!
Pookiedoodle
Totally in love with Mika
Hooooooooooraaaaaaaaaaaaaaaaaaaaay!!!!!!!!!!!!!
That's fantastic news, you've waited so long for this!
Congratulations, you must be chuffed to bits
xx
That's fantastic news, you've waited so long for this!
Congratulations, you must be chuffed to bits
xx
